NIH Data Access Committees and Chairs
NIH Data Access Committees (DACs) review and approve or disapprove all requests from the research community for access to datasets within the database of Genotypes and Phenotypes (dbGaP). Decisions to grant access are made based on whether the request conforms to the specifications within the GDS Policy and program specific requirements or procedures (if any). In particular, all data uses proposed for dbGaP data must be consistent with the data use limitations proscribed for the dataset by the submitting institution and identified on the public website for dbGaP. DACs also review and approve or disapprove all requests for access to dbGaP data for programmatic oversight by NIH employees.
DACs are composed of senior Federal employees with appropriate scientific, bioethics, and human subjects’ research expertise. Members may be appointed for a specified term as defined by the convening Institute. Consultants with specific expertise may be invited to meetings or to provide written consultation. Consultants may be Federal or non-Federal employees, and are not voting members of the DAC. Timelines for responding to requests for access to dbGaP data will vary, but all NIH DACs will strive to provide decisions or feedback to requesting investigators in a timely manner.
Roster of NIH Data Access Committees (DACs) and Chairs